Archive for the ‘family’ Category

Making Your Heart Sing   1 comment

My husband and my oldest have a lot in common. Yeah, yeah, they share genes. And they look a lot alike. Similar build (long and skinny), similar coloring. It is, however, beyond skin deep for them.

They have a passion to create, they can spend hours with paints and pencils, paper and a head-full of ideas.

They also LOVE a neat house. While all of the above things are integral to who they are, to understand them on a deeper level you need to know that they are neat freaks. Yep.

And they are stuck with the three of us who, ahem, don’t have that “problem.”

Before you pity them too much, we have collectively reached a new level of neatness and organization in our home. Why? What has brought about this earth shattering change? We had a Realtor come over. As we explore what we need as a family, freedom and independence for Fawn has come up repeatedly. So, we are prayerfully (as in HELP!!! Oh, please HELP!!) considering selling our home to find one that presents less challenges, has a bedroom for each little girl, an office, space to entertain, and a price we can afford. Ha! Did I mention we are idealists?

So, all of this to say, my husband and my oldest? Their little hearts are a-singing! Our home is neat!

Posted January 11, 2011 by comomma in family, Uncategorized

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Wandering   1 comment

So, I left you all Jess wondering what happened next, right? We had no answers other than the fact that my daughter was overly dramatic and depressed and generally making all of this stuff up so that more people would pay attention to her. Whew.

While I did internet searches on horrible diseases, and took her to a chiropractor, a woman, a dance mom, emailed me to ask how Fawn was doing. You see, she was an OT and had watched her fall to the floor like a rag doll at the dance studio and knew something was really wrong. When she heard the above “answer,” she emailed a children’s hospital and a pediatric specialist to get their opinions. These were both out of state and completely unknown to me. And what, pray tell, did these strangers from two different states have to say? Well, they said that they had each had a patient with similar symptoms and they were eventually diagnosed with POTS. I had a diagnosis within two days of this dance mom emailing me, now I just needed to have some doctors agree with me!

 

Did I mention how awesome our pediatrician is? No, really, she is. I called ten minutes before the office closed and left a message. She called me 15 minutes after the office closed and said something along the lines of “I just looked this up on the internet, I think we have a diagnosis! I am going to make some calls tomorrow to see if I can find a doctor who can help.” Really.

 

Now at this point I have to say something else. I don’t believe in accidents and stunning coincidences. I believe this was GOD. He caused a mom who didn’t know me well to care and to reach out and to find some answers. And a doctor to believe me. And the next day? Our pediatrician made two phone calls, and the second one was a doctor who not only knew about POTS, but “collected” patients. And so, next evening (when she was not actually working at the office, but working for us) she called to tell me that she had an appointment and some interim instructions, and that this doctor also felt like POTS was the answer.

Posted January 9, 2011 by comomma in family, Uncategorized

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Broken   1 comment

To give a little background, in November of 2009 Fawn was very, very active. She was dancing competitively (placed in the top third at the regional competition), practicing at home daily, going for hikes, walking, running, and generally being a normal kid. A normal, very busy kid. She was 11. When 2010 rolled around, all seemed normal until about February.

Fawn had a cold and had been feeling awful, but OTC medications seemed to help and she was getting over it. Then she started having problems in the mornings – shakes, nausea, cold sweats. Food helped. Then she was having problems at dance class. Her legs felt like lead, she was out of breath, so dizzy, so nauseous. All of those things rolled together sounded like blood sugar problems. So, with the help of our pediatrician, we altered her diet. More food, more often. She ate all of the time. I personally thought the plan was excellent so I snacked along with her. To help her of course.

I got lots of advice (moms, they are so helpful!), good snack ideas for more calories/carbs/proteins. This time, however, it wasn’t helping. She was getting more of her symptoms, not less. So the blood tests began. She became well-known at the lab. Every single one of those tests were normal, and yes, they tested for almost everything. The pediatrician ordered some duplicates to make sure.

What was she like right now? I’m trying to remember. She was active, but slower. She played, but she sat a lot. She’d run, and then rest. She competed in June (placed 5th!), but I put a lot of makeup on her to make her look the right color. Does that sound awful to you? I put bronzer on and blush and coverup for the dark circles under her eyes. Her outfit hung on her strangely, since she had lost some weight. Everyone told her how good she looked! She just smiled and whispered to me that people must not have been able to see the makeup.

And then. And then. The STOMACH PAINS. Now, for those of you who don’t know, if you are an adolescent girl with mysterious symptoms and STOMACH PAINS, that does not point doctors toward chronic illness, it points them to chronic depression/drama/showboating. Did you catch the nickname I picked for my daughter? Let’s just say she is the opposite of drama. I am not very confrontational, I really hate it, but when, coupled with negative tests and vague symptoms, the pediatric gastroenterologist brought forth his idiotic brilliant diagnosis I was less than enthused. I might have, even, expressed it a little bit. And, when she had an actual diagnosis several months later, I *might* have called his office to let him know. In the interest of education, of course. Doctors are always learning, right?

Bless our pediatrician, I mean it. She heard me out when I said I didn’t believe the other doctor. I said he was wrong, and she listened. We had no answers, negative tests and it was the end of June and there wasn’t anywhere to go. I must have plugged her symptoms into dozens of medical websites, done web searches, the problem, it seems, is that vague symptoms are just that, vague. They apply to hundreds of bizarre, frightening, and deadly diseases. I wanted an answer, desperately wanted an answer, but I didn’t want most of those answers.

Posted January 5, 2011 by comomma in family

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Two things (maybe three)   Leave a comment

First, my husband said that my title “Spoons” was unnecessarily cryptic. I was referring to this.

 

Second, I have decided for my sanity, to nickname my girls. That way, I can refer to them more specifically. The nicknames are kid-approved and are (drum roll, please, my brilliance is underwhelming):

Fawn: 12, chronically ill with dysautonomia. Quiet, caring and a peacemaker, she is always ready to beat you play a game with you.

Robin: 10, busy and always moving, sensitive and caring, she’ll care for your child or nurse you when you are sick.

Chipmunk: 8, loud and hates to be ignored, she loves to do things as quickly as possible and loves to rush to help you.

 

Third, for posterity and my own sanity (which is questionable, I admit), I am going to chronicle Fawn’s story. I am working on it at the moment. I want to make sure I have it right, so that my girls can read it and remember, because, SOMEDAY, this will be a memory. I have to hope.

Posted January 5, 2011 by comomma in family, Uncategorized

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I never posted my official results.   Leave a comment

I realize that I left at least, um, two? people wondering how my eat more vegetables/get more gassy (did this affect my carbon foot-print?) diet went.

Drumroll, please.

I lost 12 pounds. Since then I’ve shed one or two more, but I’m happy with where I’m at – not looking to lose anymore. Although I’d like to firm up the ones I have…

Posted May 9, 2008 by comomma in family

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Rumbling ‘Round the Mall   Leave a comment

My mother, dear one that she is, treated two of my daughters (don’t worry – the third had no interest whatsoever) to an adoption at Mollycoddles. This includes adorable baby, adoption process (minus a visit from a social worker), a picture, a check-up, baby’s first “bath,” and matching hospital wrist bands. Uh huh. It doesn’t get much better than this.

Also included in the package is a check-up (because pneumonia frequently attacks baby dolls) anytime you come to the mall including immunizations, and a stroller to borrow for your visit to the mall. So who gets to go to the mall a lot? Where do those two dear little ones want to spend their time with Grandma or their Daddy-Daughter date? And who gets to be followed/attacked by strollers in the mall?? Who, I ask you?

Anyway, I must say, however, that these incredibly expensive strollers that we borrow for free are wonderful for one very important reason. They have rubber wheels, not hard plastic. So the draw attention to themselves, but they make very little noise. Thankful for little things…

Posted November 9, 2007 by comomma in family

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Gone Feis’n   1 comment

We returned, be-ribboned, to take our places at home, and to shower thoroughly. Ugh. We spent the morning doing our class feis. This is an Irish Dance competition. A chance to show off your steps, be judged, and see how you compare to the next girl (there are very few boys). This one was only for our school, so it didn’t “count.” But I think anything that builds moral like this one did is worth more money than I could pay.

I had the girls dance any dance they knew some or all of. And they did well! And they followed the mantra “Just keep dancing, just keep dancing.” I was so proud. Way to go ladies, way to stand tall, smile and do your best!

Posted November 4, 2007 by comomma in family