Archive for the ‘POTS’ Tag

Wandering   1 comment

So, I left you all Jess wondering what happened next, right? We had no answers other than the fact that my daughter was overly dramatic and depressed and generally making all of this stuff up so that more people would pay attention to her. Whew.

While I did internet searches on horrible diseases, and took her to a chiropractor, a woman, a dance mom, emailed me to ask how Fawn was doing. You see, she was an OT and had watched her fall to the floor like a rag doll at the dance studio and knew something was really wrong. When she heard the above “answer,” she emailed a children’s hospital and a pediatric specialist to get their opinions. These were both out of state and completely unknown to me. And what, pray tell, did these strangers from two different states have to say? Well, they said that they had each had a patient with similar symptoms and they were eventually diagnosed with POTS. I had a diagnosis within two days of this dance mom emailing me, now I just needed to have some doctors agree with me!

 

Did I mention how awesome our pediatrician is? No, really, she is. I called ten minutes before the office closed and left a message. She called me 15 minutes after the office closed and said something along the lines of “I just looked this up on the internet, I think we have a diagnosis! I am going to make some calls tomorrow to see if I can find a doctor who can help.” Really.

 

Now at this point I have to say something else. I don’t believe in accidents and stunning coincidences. I believe this was GOD. He caused a mom who didn’t know me well to care and to reach out and to find some answers. And a doctor to believe me. And the next day? Our pediatrician made two phone calls, and the second one was a doctor who not only knew about POTS, but “collected” patients. And so, next evening (when she was not actually working at the office, but working for us) she called to tell me that she had an appointment and some interim instructions, and that this doctor also felt like POTS was the answer.

Posted January 9, 2011 by comomma in family, Uncategorized

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If I were truthful   1 comment

If I was brave enough to overwhelm people with the truth, if I was courageous enough to be (forgive me, I’m going to quote Christians) “real,” I would answer the question of how we are doing.

The truth is, my daughter rarely sleeps anymore. Her head hurts too much to let her. We’ve helped her maintain her weight, although the doctors keep harping on how skeletal she is. Last night she cried, and I cried with her, because I asked her what she wants to be when she grows up and she said she didn’t know, because she doesn’t know if she’ll be able to do anything, even college. Today her eyes are accentuated by the bruised coloring underneath them. It is getting worse and so, again, I am leaving messages for doctors.

I would tell you that she doesn’t want to do any appointments for awhile. I can’t say that I blame her, but it doesn’t stop me from wishing I could take her somewhere that she could get a solution, instead of another thing to try and hope.

If I were truthful, I would probably cry while I told you all of these things. I would look away, because I can’t stand crying in front of people and I would crumble if you touched me. But what will I really say? I’ll tell you we are the same, we are fine.

Posted January 4, 2011 by comomma in Uncategorized

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